To every single person who has supported our family, we want to say a heartfelt thank you. Over the past weeks, we have experienced a level of kindness, prayer, and generosity that is difficult to put into words. We are deeply grateful for every message, gesture, and contribution made in support of Sadie and Jesse.
Behind the scenes, we continue to work closely with medical specialists and international centres to identify the safest and most appropriate treatment pathways for both children. Given the rarity and complexity of DOCK8 immunodeficiency, this process requires careful evaluation of centres and teams with direct experience in treating this condition.
As part of this process, we have been in contact with the National Institutes of Health (NIH) in Washington, USA, and are engaged in ongoing discussions regarding Jesse’s potential eligibility for a specialised treatment programme. At this stage, these discussions are still under medical review, and no final decisions have been confirmed.
Sadie is currently too young to qualify for the same programme, and we therefore continue to explore alternative international options for her with appropriate specialist teams.
We remain prayerful and hopeful as doors continue to open, and we are committed to planning carefully and responsibly for the future of our precious children. Thank you for standing with us during this uncertain and challenging time. Your support means more to our family than we can ever express.
With sincere gratitude,
The Krause Family
Family Update #5
