When a diagnosis is uncommon, there is often no roadmap, no local reference point, and very little public understanding of what families are facing day to day. That’s why awareness matters.
We want to extend our sincere thanks to Brent Lindeque and the team at Good Things Guy for sharing Jesse and Sadie’s story with such care and humanity.
You can read the article here:
https://www.goodthingsguy.com/people/siblings-rare-condition-south-africa/
Brent has a rare gift for telling stories that don’t sensationalise hardship or reduce families to headlines. Instead, he creates space for understanding and that matters deeply in a journey like this one.
DOCK8 immunodeficiency is not a condition most people have ever heard of. It doesn’t come with public campaigns, established local treatment pathways, or widespread recognition. Families facing it are often navigating complex medical decisions while simultaneously explaining, again and again, why a simple infection isn’t simple, and why “waiting it out” isn’t an option.
For donors and supporters, awareness builds context. It allows people to give not out of shock or pity, but out of understanding and trust. For families, awareness reduces isolation. It reminds us that even when the medical road is narrow and uncertain, we are not walking it unseen.
Thank you, Brent, for using your platform to amplify stories that matter and for doing so with integrity. To everyone who has read, shared, prayed, or reached out after seeing this article, thank you. Your kindness strengthens us more than you know.
